Aging with Hemophilia: Perspectives from a Cohort

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Date: November 29, 2022
Time: 9:30 a.m. to 10:30 p.m.
Location: Virtual event
Category: Seminar

November 29, 2022 (Public event, open to all)
Aging with Hemophilia: Perspectives from a Cohort
Tam E. Perry, Associate Professor, Social of Social Work Wayne State University

It is estimated that approximately half of the individuals living with hemophilia in the late 1970s to mid 1980s were infected with HIV by contaminated blood products.1 While advances in treatment [e.g., synthetic blood products] have changed the trajectory of people with hemophilia, science has also changed the life course of individuals who received earlier treatment modalities. For the first time in human history, individuals with hemophilia are living beyond their 30s and 40s. Aging persons with hemophilia (APWH) have witnessed unprecedented treatment changes including home infusions due to factor concentrate availability (1970s), and accessing synthetic factor (mid 1990s) to counter dependency on a knowingly contaminated blood supply (1980s) resulting in HIV and/or hepatitis contraction for some. Given these contexts, this cohort continues to face unique challenges as they age with hemophilia and other conditions. 

Dr. Perry will share findings from her study funded by the National Hemophilia Foundation. This project is a collaboration with Dr. Sara Schwartz (University of Southern California) and Dana Francis (retired social worker from UCSF's Hemophilia Treatment Center). The study focused on understanding the experiences of individuals over 50 aging with hemophilia. Themes discussed include the multi-level impacts of changing life expectancies, navigating a health system unprepared for APWH, and the impact of changing time horizons (applying Laura Carstensen's Socioemotional Selectivity Theory) and complex trauma experiences of this generation. 

Dr. Tam E. Perry is an associate professor at Wayne State University School of Social Work.  Her research addresses urban aging from a life course perspective, focusing on how underserved older adults navigate their social and built environments in times of instability and change. She is co-director of the NIH funded Community Liaison and Recruitment Core of the Michigan Center for African American Aging Research. She also currently serves as research chair for a multi-agency coalition, Senior Housing Preservation Detroit. Two of her recent projects are "Navigating Time and Space: Experiences of Aging with Hemophilia" and "Experiences of Belonging: Assessing Vulnerabilities of Older Detroiters Within Changing Urban Environments."   She has recently been selected to be a fellow in the Gerontological Society of America and is the past-
president of the Association for Gerontology Education in Social Work (AGESW).

Zoom Link:
Meeting ID: 995 0849 6639
Passcode: 196462
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November 2022